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19-10-2022 - Fondation Maladies Rares and VHL France Launch Call for Proposals on von Hippel-Lindau Syndrome and Haemangioblastoma of the Central Nervous System and the Retina
Fondation Maladies Rares and VHL France have launched a joint call for proposals to support projects led by French researchers into von Hippel-Lindau syndrome and/or haemangioblastoma of the central nervous system and the retina.
The Fondation Maladies Rares (Foundation for Rare Diseases) is a non-profit umbrella organisation created in 2012 within the framework of France's second National Rare Diseases Plan. Its two main objectives are to understand rare diseases to facilitate their diagnosis and to accelerate the development of new treatments and to improve the lives of people with rare diseases and their families. Its overall mission is to promote, coordinate and support research on rare diseases to alleviate the social and therapeutic isolation of individuals afflicted with rare diseases and thus improve their daily lives.
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